Every so often Heavenly Father throws me a curve ball and I am reminded that each and every day is a gift. We never really know what is around the corner.
This weekend I had a million plans. I knew what I was going to wear, who I was going to see, what we were going to do and how much fun we were going to have.
Yet amid all the best kept plans, the coordination of schedules and conversations, nothing happened the way I had envisioned it.
While this is just a bump in the road in the grand scheme of life it is just another reminder of how easily and quickly things can change.
This isn’t a new concept to me. Surely with the last six years under my belt I have enough evidence of Heavenly Father’s sense of humor when I relate to him what my plans are. Yet, as usual it is something I keep having to re-learn or be reminded of from time to time.
How do we best prepare ourselves for what might be coming at us from around the corner? I’ve pondered this question a lot this weekend. Not just the little things, but the grand ones. How different would my life have been if I had been more prepared. If I had known anything about the disability world. If I had known anything about the human body and the way it functioned. I wonder if I had been familiar with the systems of care I would come in contact with or if I had any real guidance as how to navigate them. What would my life have been like this last six years had I been armed with even a speck of information regarding these things.
We all face uncertainty. Individually and collectively. We can map out and plan our lives down to the very tiniest detail, yet despite our best efforts there will be twists and curve balls.
Small little tiny things, a speck on the calendar that goes unfulfilled and the snowball effect of those things. Great big events that splatter all over your life and change the way you are, how you cope and your entire existence.
Preparing for these surprises seem almost ridiculous. I mean, now that I know the hardships as well as the greatships that have come from having a disabled child I could prepare every expectant mother on the planet on the what ifs. Yet, six years ago, I would not have known to even ask.
I think the real answer lies in how well we deal with these splotches. How we cope with the unexpectedness of those curve balls that life throws us. I know for certain I have much to learn.
I cope with avoidance. I ignore things I need to do, because of a new drama that is unfolding. I refuse to have conversations that I am scared of having. As I go through life, I get better at these things, but have no perfected them by any shape of the imagination. I have hurt others beyond anything I can describe because of this. Just one phone call and I probably could have handled things so much better. But, nope. I hide.
I hope that in the future, I can retain what I have learned. That I can wade through my own insecurities and heartaches and realize that others around me deserve to at least know the truth and what is going on.
I read in a disability parenting book that we realize at one point as parents that our friends will never really understand our situations. We also sense that our friends don’t really want to know the ups and downs and heartaches. I think there is a lot of truth to that. It’s not a fault of anyone, not really. We are all afraid of things we don’t know or understand, combined that with it having to do with our children, it even compounds those issues. So, while I believe this to be true I think it does friendships an injustice. Why should I assume that my friends don’t want to know. I need to at least give them the opportunity to say how they are feeling.
Their is a huge vulnerability to that however. It is horribly uncomfortable to feel so exposed. That is the root of the root and the bud of the bud.
Hopefully someday in a Galaxy not so far away, I will be able to pull together myself and respond to those curve balls that are just around the corner.
Until then, I hope you can all hang with me. I am enormously grateful for those of you help me be the best I can be.


